Note: I try VERY hard as a parent and as a person in general, to avoid being negative and ranting and raving and being miserable when we go through hard times with Jaymes. I much prefer to be upbeat, hopeful, and inspiring. However, this is real life and in the interest of being honest and open, as is the point of this website, I'm going to share the not-so-inspirational portion of our life with Jaymes. This was written in an effort to cleanse my brain and relieve some stress, and thus may contain things I would normally never say. For the sake of it making sense, a few things you'll need to know. Batty is a horse, Bute is a horse medication similar to aspirin, in the end the dog vomited up the Bute referred to in this little narrative, and the Child Protective Services case against us was closed. ( :
I hate our society today, how anything that happens to a child is
turned on the parent, regardless of circumstances. Kid falls off a
horse and breaks ankle,
so the hospital social worker calls CPS to investigate. Baby has a
tumble off the couch and CPS is called. Neighbors call CPS on you, and
suddenly you're a
bad parent because you can't watch your kids while you sleep. I can see
why so many people don't take their kid to the hospital for things,
unless
they're really serious. If you come in with an injured kid, you'll get
a visit from a sicky sweet social worker who will subtly ask
insulting
questions, then she may or may not tell you before calling CPS.
Jaymes is a different type of kid. Yes, he's 5, but it doesn't mean
you can treat him like a 5 year old. He does stupid things like
flipping his bed on
it's side to reach the window locks, breaking his window screen out and
hopping down 10 feet to the side of the house. He kicked his little
sister off the
couch where she was sleeping as a baby and sent her to the hospital with bleeding in the brain. He rams into things in rages,
and gets bruises. He is not a normal child. I watch him, but it doesn't
matter. I
blink, he's on the counter or in the fridge, or trying to go outside. I
go to the bathroom and he's on top of the fridge. I cannot keep up. I
love that
he is at school most of the day, because I think I'd go insane if he
were here 24/7.
Come summer we better have respite care or I'll be entirely insane.
So recently I had 5 bute pills up on a high counter, waiting to take them
down to Batty for his ouchie hoof. I look away to get Sierra off the potty, get back
and they're
gone. Gone. Jaymes was with me until the last minute or so of the
diapering of Sierra. In the next room. I heard him go sit in the living
room. I don't
know if he took the pills and ate them, hid them, gave them to the
dogs. They're gone without a trace. I am 99% sure he did not eat them,
they'd be
bitter as hell. He might take that first bite, but he'd stop when the
taste hit him. More likely he either fed them to my dogs (hope not, but
no one seems
sick) or hid them someplace. I have looked all over the house, short of
digging through the deeper portions of the trash. I called poison
control, they said to
watch for vomiting. Jaymes is fine, he chowed down his dinner and is
behaving totally normally. Trashing my house, hitting and slapping his
sister, biting me. I
know that I was stupid to leave the bute out at all, but it was at a
height of my HEAD. He would have had to use a chair and climb onto the
lower counter, then
maybe reach them. How he did that in the minute he was out of my
sight.. No clue.
If he showed any signs of illness, you can be sure I'd take him to
the ER. But he's totally normal, and I don't think he ate them. What
upsets me
is that I have to even worry about taking him in. Parents should not be
punished for taking their kids for medical care. God forbid he ever
breaks a bone. Why
is our society so anti-parent? A kid gets hurt, it's abuse. Kid gets
into something, neglect. Kid touches himself, must be being sexually
abused by the
parent (not me, lol, but I've heard it before.)
Stuff happens. Kids get into things. Kids fall out of trees or off
horses, they snatch pills or kitchen cleaners. You have to turn away sometimes, you have to take care of the
other kids, you have to
go to the bathroom. You have to sleep at night.
You have to blink.
Jaymes doesn't understand not to jump out the window, not to touch
the hot stove, not to wander around in the road. All those things that
other
people's 5 year olds just KNOW, Jaymes is oblivious to. He has no
impulse control, no concern for his own wellbeing, no control
whatsoever. He can't
feed himself, clothe himself. Nothing. He doesn't get tired and stop,
he doesn't sit quietly and watch TV. He screams, head bangs, tries to
beat up his
sister 24/7. There is no peace time. There is no child free time, or
mommy time. 3 times a week I get to ride Batty, and thats only for an
hour or 2. The rest
of the time I am home listening to him scream, cleaning up the huge
messes he makes, trying to make him eat and do basic things that most
people's 2 year
olds can do.
I'm sick of it. I don't want this anymore. I don't want to have a
kid who is 5 and in a diaper, and screams and flails on the
floor. I
don't want a kid who smears himself and his walls with poop at night.
The kid who climbs onto the counter in a rage just to throw himself to
the floor.
I love Jaymes.. I really do... I'm just at this point that I can't
handle anymore. And I can't talk to anyone about it, because as the CPS
woman
who came after the window incident told me,
saying I'm overwhelmed and need help is admitting to some kind of
mental illness or
inability to care for my kids. I can't tell anyone how tired I am, how
much I want to get away. Jason doesn't get it, because he's not home
for it.
He can't stand Jaymes 90% of the time anyway.
We still don't have respite services or the personal care aide yet.
It's been months. I know his caseworker is trying, she's wonderful. But
I
can't handle this anymore. Something has got to become easier for me
soon. If this goes on, I'm going to have to put him in a residental
home. That
thought makes me sick to think about... But then I look down as I'm
typing, where he's on the floor screaming and beating himself, and I
can't even
muster up the desire to try and calm him down. Just snuggling Sierra,
who he literally dropkicked across the hallway.
End note: I'd love to say I only felt like this once, but I can't. It's on and off, comes and goes. Though I am definitely not seriously considering putting him into a residential facility, we fear greatly for Jaymes' future if we can't make more headway. He has wonderful days where he talks and smiles and hugs and kisses. He's an amazingly intelligent child. We have a long road ahead, and lots of work, and only time will tell what his future holds.
As positive as I and other parents try to be, we cannot help being human. We get tired, depressed, frustrated. It doesn't make us bad parents, it makes us real. Human. We have our ups and our downs, and we push on through it all. And it turns out to be worth every painful step.