I do not understand why kids with Autism are treated so poorly by
society in general. I know this is a common question, but I think that
only parents of Autistic kids can fully comprehend it. Jason and I have
virtually no friends. The two or three people who will associate with
us only do it sporadically, and prefer not to have Jaymes around when
they are. None of the other moms in the neighborhood want much to do
with me. I'm not an unpleasant person, I generally get along with
everyone. I'm quiet. Unfortunately, my son is not.
When I first
met our one neighbor on the corner, she was out feeding her horse. Good
common ground, as we were getting ready to buy Jaymes a horse at the
time. We chatted about her fencing, her kids, etc. A few days later,
Jaymes and I stopped over and he played a little while. But each time
we saw this mother, Jaymes would show a little more of himself. Started
out just wandering around her house, opening the fridge. Stopped him,
but you could tell she was a little creeped out. I
stopped him, of course, as always. It progressed to him screaming once
or twice when I stopped him digging into something.... Then one day to a
tantrum in her driveway as I was getting instructions on how to care
for her horse, who I had agreed to watch during her vacation. That was
pretty much it... She's still friendly, but you can tell she would rather not have Jaymes around her place or her kids.
You know, I get it, I really do. It's awkward to watch
someone's child throw himself on the driveway and beat his head and
scream. I know. But he's not like that 100% of the time. Jaymes loves
other kids. He sees her five year old son and wants to play... But I
have to stop him because it's become evident we're not really welcome.
The only other kids on our street are older, 9 and 12 I
believe... they do come play with Jaymes, which is great... But they're
annoying as anything. Someone explain to me why these kids can play
with the other neighbor's kids, with their awful behavior, and mine
can't?
These kids, a boy and a girl, will walk right into your
house. No knock, nothing. They just invite themselves in! Apparently
they have done this to most of the people on the street. They've only
done it once to us, thankfully we were both fully clothed, not doing
anything we didn't want seen, etc... But seriously. Who lets their kids
do this? Not only that, but they'll come at the kids bath time, and
pound on our door. Most people will leave when their knocks go
unanswered- but do these children? Nope. They will go from the front
door, to the side, to the back door banging as hard as they can. For 30
minutes. Without stopping. Yelling at my dogs to make them bark.
I am not the mean type. I love that the kids want
to play with my kids, I really do. But I like my personal space. You do
not come into my home without permission. You knock once, if I don't
answer, you go away. You stay out of my horse pasture. If you
get kicked, I'm liable. I don't have liability insurance, and I sure as
heck don't have the money to cover your medical costs. True, my horse
is the most well behaved old man I've ever met, but that isn't the
point. You do not constantly pick up my not yet two year old daughter
and dangle her upside down on the trampoline. Sierra knows to run to me
when they appear. And so, I avoid it. Jaymes loves them so much,
too, that I guess tolerance would be prudent. I guess, given my reaction to these children, I can understand my neighbors reaction to Jaymes.
My kids don't run
wild and unsupervised around the neighborhood. They don't barge into
other people's homes They don't damage property, nor do they damage
gardens or harass animals. They stay on our property, under constant
supervision. I expect them to behave. Why can't people see these things, and look past the less than desirable behaviors?
I'll tell you why. Because my son doesn't
understand when you tell him he can't touch the electric fence because
it's on. Because he doesn't understand turn taking. Because he wants to
wave your broom back and forth across his face, and snuggle a big rock
in your yard. Because when I stop him from something, he falls to the
ground screaming and crying, until I have to physically drag him home.
But you know something? It's been worse. It can be worse. You have never seen the worst Jaymes can get.
Know
something else? Jaymes isn't a spoiled brat. He's not getting away with
everything. He's not neglected, or ignored. He's not a bully, nor is he
doing anything in a mean spirited way.
He has Autism. My child
is what he is, and the most any of us can do is work to try and make it
easier for him to function in a world that cannot, or will not, bend to accommodate his needs.